About | A Non Profit Org. to Help People with Rare Disease

About us

Honeycomb Health is a nonprofit organization created to help people living with a rare disease to securely digitize, organize, and manage their health records.

 

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Rare disease is in our families and among our friends

As a rare disease patient, you are rare by definition. Rare disease patients do not have the numbers to spur the extensive clinical trials of more common diseases. We recognize how you must manually manage endless medical data from different doctors, keep track of test results, and push for diagnostic testing. You must advocate for yourself in ways patients of more researched diseases often don't have to. The course of action for your recovery or treatment is typically undefined or even unknown to you doctor which forces you to have to search for doctors that are familiar with your disease.
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We get that. Honeycomb Health is here to change this

Honeycomb Health will empower patients suffering from rare diseases by providing the ability to securely store, access, and share your health information all in one place. You will be able to share your data with health care providers, loved ones, and future generations. By owning your data and uniting with other patients, you will have a better chance at pushing for- and participating in- clinical trials.
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The hub where large groups of patients share information

Honeycomb Health will be the hub where large groups of patients afflicted from the same disease can connect with the organizations with the means to help them. Let's end the isolation and wait-time so many rare disease patients face daily.

Board of Advisors

Robert Miller

Robert Miller

MD, MBA, FASTRO, FRSA, FRSM Medical Director, Maryland Proton Treatment Center, University of Maryland School of Medicine
Brigid Siegel

Brigid Siegel

Head of Procurement
Clinical & Patient Services
Montefiore Health System
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Kellie Boyle

Sr. Director
Global Multichannel Marketing
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Team Members

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Elizabeth Izard Apelles

Co-Founder & Strategic Lead CEO of The GTO Group
Maureen Costello

Maureen Costello

Principal · Strategy · Insights and Behavioral Design
Greater Than One
Pilar Belhumeur

Pilar Belhumeur

Executive Creative Director
Greater Than One
Philip Apelles​

Philip Apelles​

Analyst
The GTO Group
 Paco Galindo

Paco Galindo

Account Director
Greater Than One
Chris Kasper

Chris Kasper

Project Management Supervisor Greater Than One
Matthew Littleton

Matthew Littleton

Associate
The GTO Group
Rebecca Trahan

Rebecca Trahan

Partner
barking dog design
Ken Winell

Ken Winell

Chief Technology Officer
Greater Than One

Whitepaper

We believe that by creating your hive and building connections, you will gain the insights and support only found among people of your tribe. Let this be your place to ask questions, share ideas, and meet others going along the same journey.

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Our Stories

We believe that by creating your hive and building connections, you will gain the insights and support only.

 

HoneyComb Reports